Clear, practical advice on daily living equipment
This page provides links to organisations and forums for further advice and information relating to toileting and incontinence. Click on the links to open the web pages in a new browser window.
Local Age UK (previously Age Concern & Help the Aged) charities offer a wide range of activities and services. Dependent on the size of your local branch it may offer information and advice; activities outside the home; emotional and social support; and personal care. Search for your local Age Concern.
You could visit the toilet section of the AskSARA website which will guide you through questions about using your toilet and then offer relevant advice, toilet related product suggestions and supplier details.
The BHTA is the UK's oldest and largest healthcare association. Its membership consists of some 350 companies (both large and small) from across the many non-pharmaceutical sectors of the healthcare industry. The BHTA is closely involved with developing industry and product standards, maintaining and improving on product choice, quality and, above all, safety. Of particular note is the BHTA's Code of Practice, which sets out the standards its members must meet and the work alongside this to identify best practice, eliminate "cowboy" behaviour and to ensure that member businesses are ones that members of the public can trust to give good service. www.bhta.net
The Bladder and Bowel Foundation is a UK charity providing information and support for people with bladder and bowel disorders, their carers, families and health care professionals. Services provided include educational booklets, information & product factsheets, a magazine, online forum and helpline 0845 345 0165. They also maintain the UK independent Directory of Continence Products which includes bedding, pads, pants, catheters and penile sheaths. www.bladderandbowelfoundation.org
You might find that you have to rush to the toilet as soon as you feel the need to urinate and may 'leak' if you do not get to a toilet in time. This is called 'urge incontinence' and can be a particular problem when you are out and about and suddenly require a toilet that you can use. The Bowel and Bladder Foundation have produced the Just Can't Wait toilet card. You can show this card when you are out shopping or socialising and it may help you gain access to a toilet. The card states that the card holder has a medical condition which requires the urgent need of a toilet. Although the card does not guarantee you access to a toilet many places will be willing to help.
For more information visit the Bowel and Bladder Foundation Just cant Wait Toilet Card Page
The British toilet association states that it aims to represent the interest and aspirations of 'away from home' toilet providers, suppliers and users of all types and to act as the catalyst for change in the pursuit of standards of excellence in all areas of public toilet provision and management. http://www.britloos.co.uk/
The Changing Places Consortium campaign on behalf of the thousands of disabled people who cannot use standard accessible toilets including people with profound and multiple learning disabilities and their carers. They campaign for 'Changing Places toilets'. These are toilets with enough space for disabled people and their carers, and the right equipment, including a height adjustable changing bench and a hoist. Thus these toilets are more than standard accessible toilets. The Changing Places Consortium website address is www.changing-places.org
Their website includes a UK map of changing places toilets
Charity choice is a searchable directory of charities on the internet. These charities that may be able to assist with funding, or searching for funding for equipment. Eligibility criteria will vary. www.charitychoice.co.uk
NHS Choices have a document online titled 'Getting help for incontinence'. This provides information on who can provide assistance with the issue of incontinence, and how to access this assistance.
PromoCon seeks to improve the life of all people with bladder or bowel problems by offering product information, advice and practical solutions to both professionals and the general public. They have a helpline 0161 834 2001 (Mon - Fri 10 to 3). www.disabledliving.co.uk/PromoCon/About
RADAR is the UK's largest disability campaigning network. RADAR has a mission to 'enable individuals, networks and policy-makers to do things differently'.
The RADAR National Key Scheme (NKS) offers key holders access to around 8,000 locked accessible public toilets around the country. Although RADAR would prefer that providers of accessible toilets keep their toilets unlocked if possible the NKS may be necessary if the provider concerned has to keep the toilets locked to stop vandalism and misuse. For more information about the key scheme visit the RADAR National key scheme website or to view suppliers of the key (from £ 3.50 excluding VAT in 2010) click on the key pictured below. RADAR publish the national key scheme guide with listings of all RADAR Key Scheme toilets around the UK.
If you are looking for a private practice Occupational Therapist to give you independent advice or to provide private treatment, you can search the online directory which lists members throughout the country.
All advice is either supported by references (cited in the text) or is based upon peer reviewed professional opinion. Our advice is impartial and not influenced by sponsors or product suppliers listed on the site.
Conflict of interest statement